Younger Onset Dementia Key Worker Program (YODKWP)

Transitioning program

This program is transitioning into the National Disability Insurance Scheme (NDIS). Please read below for more information about receiving future supports.

The Department of Social Services administers this program to enable people with younger onset dementia, their families and carers to connect with a key worker. Key workers provide information, support, counselling, advice and help to engage clients with services appropriate to their needs.

YODKWP is currently delivered by Dementia Australia.

For support with Younger Onset Dementia call the National Dementia Helpline on 1800 100 500.

Transitioning to the NDIS

YODKWP is transitioning to the NDIS. As the NDIS is rolled out across Australia, the program will be progressively phased out.

Begin the process of testing your eligibility early. Key workers can assist clients through the process.

YODKWP is a defined program, meaning that most clients (under 65 years old) will be eligible for the NDIS.

YODKWP clients found eligible for the NDIS, will access the supports they need through their NDIS plan, rather than directly through the program. Clients will continue to receive supports through YODKWP until their NDIS plan is finalised.

Continuity of Support

Once the rollout of the NDIS has been completed, existing YODKWP clients who are 65 years old and over or otherwise ineligible for the NDIS will receive Continuity of Support (CoS) through the CoS Fund (the Fund), announced in the 2018-19 Budget. The Fund, administered by the Department of Social Services, will support existing YODKWP clients to continue to receive similar supports.

Details about how support will be delivered through the Fund will be made available once long-term arrangements have been finalised.

Download and share stories and resources

These stories and resources help to explain the types of supports available for Younger Onset Dementia under the NDIS. These and other resources are available on the Dementia Australia website.

Toolkit on accessing younger onset dementia support in the NDIS.

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